Webinars
As part of the ERN GENTURIS e-training programme, each of our webinars provides either a general overview of a genturis-related topic or an in-depth look at one of the genturis diseases from a specific healthcare perspective. An important goal of our webinar series is to cover each genturis from several perspectives in order to create a comprehensive overview of the currently available knowledge for every genturis.
All our webinars include at least one speaker that is a member of ERN GENTURIS. The target audience for the webinars consists of clinicians, genetic counsellors, clinical scientists and other genetics health professionals. The webinars last approximately 30-40 minutes, and viewers have the opportunity to send questions on the subject area, which will be addressed in a question & answer session afterwards. Webinars are usually held on Wednesday afternoons.
The previous webinars listed below are subdivided into the following categories:
Date |
Time |
Speaker |
Title |
Registration* |
---|---|---|---|---|
11-12-2024 | 16:00-17:00 CET | Kenny Rodriguez-Wallberg | Fertility preserving measures in hereditary cancer syndromes – the oncofertility perspective | register |
22-01-2025 | 16:00-17:00 CET | Chrystelle Colas & Katharina Wimmer | ERN GENTURIS guideline on constitutional mismatch repair deficiency diagnosis, genetic counselling, surveillance, quality of life, and clinical management | register |
* Please pay attention to the technical requirements provided with the access link. In case of access problems related to hospital firewalls, please use your private computer and internet connection.
Date |
Speaker |
Title |
View** |
---|---|---|---|
07-06-2023 | Gareth Evans | New ERN GENTURIS NF1 guidelines and update on NF2 and SCHWN nomenclature | view |
27-01-2022 | Sirkku Peltonen & Pierre Wolkenstein | Cutaneous neurofibromas | view |
07-12-2021 | Eric Legius | Legius syndrome and its link with Neurofibromatosis type 1 | view |
10-11-2021 | Rianne Oostenbrink | NF1 from the pediatric perspective | view |
28-10-2020 | Gareth Evans | Neurocutaneous tumour syndromes | view |
** A recording of each webinar will be made available within a week after broadcast. Please pay attention to the technical requirements provided with the access link. In case of access problems related to hospital firewalls, please use your private PC and internet connection.
# This webinar will take more than one week to publish as it requires extensive editing. It will be published as soon as it is ready.
Updated on 7-2-2024