Other educational resources

PREVENTABLE's Learning Hub

PREVENTABLE’s Learning Hub is a repository dedicated to eight rare tumour risk syndromes, with content in different formats from written explanations and educational videos to real-life testimonies. The goal is to provide accessible and reliable knowledge, helping patients, carriers, family members, healthcare professionals and health managers to better understand these conditions and connect with each other.

The content of the Learning Hub was developed with the collaboration and participation of the PREVENTABLE consortium partners, particularly nine reference centres from ERN GENTURIS, which contributed with clinical expertise, research data and experiences from patients across Europe.

The following conditions are included in PREVENTABLE's Learning Hub: