Dr. Rianne Oostenbrink is an Associate Professor in the Department of General Pediatrics, at Erasmus MC in Rotterdam, The Netherlands, and works as a general pediatrician in the outpatient clinic and pediatric emergency department. She is the coordinator of the ENCORE-NF1 expertise centre at Erasmus MC, a collaborative, multidisciplinary team for inherited neuro-cognitive developmental diseases, which leads the national NF1 clinical network in the Netherlands.
This webinar will address the manifestations of NF1 in children. Children differ from adults with NF1 by either not having the full criteria present, but also being at risk for a difference in type of manifestations. Next, the impact of NF1 on cognitive and social development in children is substantial with specific needs for support. The webinar will discuss the multidisciplinary care for children with NF1.